PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goal of PCORnet is to improve the nation's capacity to conduct clinical research by creating a large, highly representative network that directly involves patients in the development and execution of research.
PCORnet is made up of partner networks – 13 Clinical Data Research Networks (CDRNs), based in healthcare systems such as hospitals, integrated delivery systems, and federally qualified health centers; 20 Patient-Powered Research Networks (PPRNs), operated and governed by groups of patients and their partners; and 2 Health Plan Research Networks (HPRNs), actively engaged in partnering to link claims data with Electronic Health Record (EHR) data. The intent is for PCORnet to serve as a platform for rigorous research on an even broader array of topics. The scientific expertise, large population size, and diversity of PCORnet make it a unique resource for both observational and interventional studies in these and other areas.
Richard Platt, MD, MSc, Adrian Hernandez, MD, MHS and Sharon Terry, MA are all co-Principal Investigators of the PCORnet Coordinating Center. The PCORnet Coordinating Center was selected and contracted by PCORI, and it is a partnership with PCORI and several organizations with expertise developing infrastructure to support clinical and patient-powered research networks' conduct of patient-centered comparative effectiveness research. These partners have collaborated to create and manage large, complex research networks using electronic health data to support clinical trials, comparative effectiveness research, health policy, and health services research.
In March 2017, the Patient-Centered Outcomes Research Institute (PCORI) Board of Governors agreed to provide up to $25.4 million in additional infrastructure-building funds to support the long-term sustainability of PCORnet through a newly incorporated People-Centered Research Foundation (PCRF), a nonprofit formed by PCORnet investigators to advance and support the network’s sustainability. Visit the PCRF Website to learn more.